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Documentary Media Ripples :: Response   March 28, 2008


Video from Surviving Depression :: Grassroots Strategies
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New Seesmic pal Karen responded to THIS video posted to Seesmic via YouTube. I respond to Karen as above. I continue to learn how to listen. In researching "The World's Longest Open Love Letter" documentary I've occasion to search YouTube for folks who speak to mental health issues. Watching these profound stories brought me way down. In the parlance of survivor circles, it's known as 'triggering'. Rather than fight it, I allowed the spiral to unfold in its way, but with an attempt at keeping my extreme artists eyes, ears and heart open so as to be able to later relate the experience. It inevitably takes longer to process this information than I expect. Input being SEEN, the new. My biggest fear is that friendships and career will be ruined as a result of going public. My online research indicates others go public about craploads of mental health issues in droves. What I see is gutsy stuff. Full of courage, hope and technique. It's my theory that healing and forgiveness require 'witness', one thing the Catholic Church got right. Posting videos about one's healing experiences admirably - if somewhat dangerously - fills that need. The NY Times recently published an interesting tech article about a new social networking site - PatientsLikeMe - that crowdsources data, statistics, charts, medical metrics. For sure, the site bucks the MSM-promoted privacy-before-all-else-for-fear-of-identity-theft or death-by-pervert-stalker trend. Here's what deputy editor of Wired magazine Thomas Goetz had to say on the subject of the social networking of mental health research: As diseases go, A.L.S. or M.S. or Parkinson’s or even H.I.V. are relatively rare afflictions, at least in the United States. Mental illness, on the other hand, afflicts a vast swath of the country. Nearly 60 million Americans have a diagnosable mental disorder, according to the National Institute of Mental Health, a population that includes everything from depression to bipolar syndrome to anxiety. For PatientsLikeMe, that population represents a huge market, not to mention the potentially lucrative bounty of data related to antidepressants and other mood-disorder drugs. But it also presents a challenge. Creating a PatientsLikeMe mental-health community — or as they call it, a “mood community” — requires a new strategy for measuring mental health. The challenge is in part semantic. Where the argot around A.L.S. or M.S. is largely clinical, the vernacular around mental health is more subjective. The official diagnostic criteria for major depression, for example, include “feelings of worthlessness” and “indecisiveness.” So PatientsLikeMe faces an input problem: how to convert the ambiguities of mental illness into metrics?Whatever its ultimate worth, the site’s answer is elegantly straightforward. Members can update their mood status every hour on a scale of 1 to 4, from very bad to very good. How they feel may be subjective, but the resulting data can be mapped across time. The site treats sessions of therapy as if they were a dose of Prozac; the type of therapy (say, group or individual) stands as the treatment, and the length of a session (say, 50 minutes a week) as the dosage.We live in interesting times. Music is "Mother's Blues" from Jeff Kelley's Classic Acoustic Blues album - about whom I've written in this space before. [NY Times article] Tags: Self-Help Art DepressionGrassroots Depression Strategies :: a Video Podcast / Documentary

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